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Parents’ hope for seriously ill boy, 2, who is being poisoned by his own kidneys

Hollie Barr with son Alfie and partner Darrel Kelly (Image: BelfastLive)

Parents of a seriously ill toddler whose kidneys are poisoning him are hoping to change their son’s life by giving him one of their own.

Alfie Barr was diagnosed with stage 5 chronic kidney disease when he was just one week old and has to undergo dialysis three times a week.

As Alfie prepares to turn three, his parents Hollie Barr and partner Darrel Kelly are hoping one of them will be a match for their little fighter, BelfastLive reports .

Hollie, from Belfast, said: “All through my pregnancy things were fine but I still had that worry, I think I knew before he was born there was something wrong.

“I had him and he was home for a week and then one night he went unconscious, just all floppy.

“If it wasn’t for my mum I don’t know what I would have done. She was trying to give him CPR and he was coming back.
Alfie undergoes dialysis three times a week (Image: BelfastLive)
The family were first made aware of problems with Alfie’s kidney disease kidneys when he fell unconscious at one week old.After a series of tests, he was diagnosed with stage 5 chronic kidney disease and doctors said his kidneys were poisoning him.

“The doctor told us he was poisoning himself, his kidneys were not cleaning things the way they should and they wanted to do the tests again,” said Hollie.

“We were brought into a wee room and told Alfie had stage 5 chronic kidney disease. His kidneys had not developed properly and they were too small and he would need dialysis and a transplant in the future.

“It was crazy, we  were just asking how this happened, we asked if it was genetic but we were told it wasn’t it was just one of those things that happened.

Alfie in hospital at just one week old (Image: BelfastLive)“He was rushed to ICU, they wanted to drain everything out of his stomach and start from there. We were in the Barbour Ward for a month-and-a-half just working on his routine and he was put on a special milk.”Alfie had a PEG tube fitted into his stomach and in October last year needed to start dialysis. He now gets dialysis three times a week in two-and-a-half hour blocks.

“He is a very social wee child and he loves seeing everyone and talking away,” said Hollie.

“He is so funny, just a wee character. He is the best wee thing ever and at the moment we are just getting more information about his transplant.

“One of us is hoping to donate a kidney to him and we hope that happens in the next year or two. It is a long process but we would do anything for him.

Alfie’s parents are hoping one of them will be a match (Image: BelfastLive)
“Me, my sister and his other aunt are all the same blood group but it has to be the same tissue type too so we need to go through other tests. His dad has blood tested recently so we are waiting on the results.”The family have started fundraising for the Children’s Kidney Fund Northern Ireland for all the support they have given them since Alfie’s diagnosis.

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